| Location | The World |
| Age | 0 |
| Date of Birth | 2006 |
| Date of Death | 2007 |
| Visitors | 780 since 12/11/2007 |
| Creator |
This is a site for all who have lost children and adults to muscular dystrophy there are many different types but its a slow muscle wasting disease to all ...Duchenne md being the most prolific they go from being able to walk do normal stuff and then its a downward spiral , watching it is horrible for parents , horrible for the boys themselves they dont live out their lives. Other types of dystrophy congenital , becker, mytonic to name just a few can go on for years like a time clock ticking away, depending from person to person how badly affected they are etc.
This site is for anyone who has lost to muscular dystrophy it is a horrible , debilatating illness with no cure , its not just physical ..its dignity its everything that goes with this illness that makes it so bad. To all of us parents and carers who know of this disease leave a loved ones memory here and for all you strangers who come across this site remember the name and give generously to this charity if you ever come across it , there really is no cure for it at all !!!!!! xxx take care , please leave a photo of your loved ones in the gallery xx tc
P.s if there is any information that is wrong here please put it right and let me know or make a tribute xx
♥♥♥♥♥♥
We feel an empty space inside
Its a place you used to be
And no one can replace you ever
Even though now your free
♥♥♥♥♥♥
Your Family and Friends Miss You all, xx
I am disturbed by the missing piece in me.
I am out of ideas to make myself okay like I promised.
I feel like am deeply wounded by the piece that has been cut out of me.
I feel speechless and out of words by the sadness that is filling me.
I miss you so much that makes my breathing hard.
I should be okay in each passing day or so I thought I would be but I missed you more that make things harder for me.
I can’t express myself, I just feel the sadness flowing in.
In my dreams you are with me, moving around me, touching me and speaking to me.
But I cannot close my eyes and live in the dreams in all day long, I have to open my eyes and find you gone and feel the missing piece.
Sometimes I wish I don’t wake up from sleep because waking up is finding you are not there.
I just wanted to say that I miss you so much please don’t hold it against me, I am trying so hard not to feel this way but I just can’t, it is just the way I feel.
I am wishing that someday you give back the missing piece in me.
You are my missing piece.
XxXxXxXxXxXxXxX
This poem was written by rjpanther
Happy Christmas, xx
I hope you all have a great day, we miss you, and will never forget you all, xxxx
New Year, x
HAPPY NEW YEAR, to all you EX Muscular Dystrophy sufferers, None of us wanted you to go away to heaven , but knowing that your free from this condition and free to move as you want puts a little flicker on the flam of heartache and pain we go through each day without you here with us.
God Bless you all. xx
i lost my brother to md he was 18 when he died 27 years ago i have got a sister who has got a son with md and a grandson and its hard knowing there is no cure for them we all miss u gary look over ur nephews love u always x x x x x
a cure could not be found
God saw you getting tired
and a cure was not to be
so he put his arms around you
and whispered, 'come with me'
with tearful eyes we watched you
and saw you pass away
although we love you dearly
we could not make you stay
a golden heart stopped beating
hard working hands laid to rest
God broke our hearts to prove to us
he only takes the best. xxxxxx
love you xxxxxx
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